DAY 2: Advice For A Newly Diagnosed Lupus Patient #NHBPM

Being diagnosed with lupus can bring about a flurry of emotions. You may feel upset or nervous about what the new diagnosis means for your future. You may be angry at the idea that your life may change. You may even feel happy that after some time of not feeling well, you finally have a name for what was ailing you. Finally, your condition has a name. Each of these emotions is normal, and no reaction is the right one. In fact, you may feel all of these emotions at some time or another.

But beyond your emotional reactions, you may be wondering what your next steps should be. Below are some tips for moving forward after being diagnosed with lupus.

1. Get a second opinion. Before you begin your journey into chronic health care, you want to make sure you are heading down the right path.

I didn’t get a 2^nd opinion when I was first diagnosed. My dermatologist originally diagnosed me (I had the butterfly rash across my face, and lesions on my neck and under my breast). After she performed her examination she was “certain” it was Lupus and referred me to a rheumatologist & neurologist who ran additional test and confirmed that I had Lupus. Honestly, that was the best day of my life. It answered a lot of questions and FINALLY I KNEW that what I was experiencing wasn’t my imagination. After getting over the initial shock, I was ready to battle & WIN!!!!!

2. Bring a friend or family member to be an advocate for you. You may need to have some tests done and see many doctors in the beginning. Having someone else there to take notes, ask questions, or just be an emotional support is very important. It is normal to forget a question, or not remember important information after a doctor visit. It is also great to have a supportive person with you who can hold your hand, distract you, make you laugh, or just listen.

I have never had a friend or family member come with me to any of my appointments (well my husband has attended 2 or 3 ). There were times when I wanted “support” and then there were times when I was happy I was there alone. From my experience, I have found that when people don’t understand what is happening they can be very judgmental. Going through the motions and of trying to come to grips with everything- JUDGEMENT WAS THE LAST THING I NEEDED OR WANTED!

3. Start a notebook or a folder for your healthcare. Take notes and ask for copies of your test results. Take time to actually read your tests and learn what they mean, or ask your doctors. Keeping a record now is a great start. It's always a much bigger job to back track and get records that you may need in the future. These records and notes can be helpful when you're seeing multiple doctors, dealing with insurance companies, applying for disability, etc.

Yes, yes, yes!!!!! I started experiencing a “brain fog” and I would literally forget what someone told me only minutes previous. It’s imperative that you keep records and minimum keep notes or download one the apps on a smart phone that will store your medical records and or notes for you. I remember an incident when my rheumatologist  had prescribed me a medicine that counter acted something the neurologists prescribed me, I ended up with massive migraines and I wanted to die (I was in that much pain). Once I gathered everything out of  my cabinets, purse, and night stand, I  went back to the doctor, showed them everything I was taking, and they figured out exactly what the culprit was. From that point forward I have kept impeccable notes and I always keep a record of my prescriptions ( dosages, strength, etc).  

4. Do your research. After being diagnosed with lupus, you will soon hear all kinds of words that you may not have heard before. Names of medications, secondary diagnoses, and symptoms can be overwhelming and scary. A great way to combat this feeling is to learn as much about lupus as you can and get yourself familiar with the lingo. This will help empower you in conversations with doctors and nurses. When you know what they are talking about you can ask appropriate and necessary questions. WebMD is a great place to start on your quest to educate yourself. There are many articles, posts, and videos on the site that are very informative.

I can’t say this ENOUGH!!!!! DO YOUR OWN RESEARCH!!!!!! I’m often asked for advice relative to Lupus. While I appreciate strangers, family & friends comfort level to ask me for advice ( treatment, & diagnosis), I refrain from giving medical advice. It’s not that I don’t care or I don’t want to share information, I’m NOT A PHYSICAN. Legally I cannot provide medical advice. I’m more than willing to share what has/hasn’t worked for me, but that information should not be used in place of a diagnosis or treatment plan.   I have this disclaimer at the end of every post “The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.” I encourage all of you to always consult with a physician before starting/stomping any Treatment plan, Nutrition (eating) regime, and Fitness plan. If you are looking for information and or support, outside of speaking with your doctor, I HIGHLY suggest that you become a member of the Lupus Foundation of America Chapter (in your state). The Lupus Foundation of America offers symposiums, teleconference calls, empowering events and the largest support group network.

5. Ask questions!!! Do not be afraid to ask questions, even questions you deem silly or unimportant. If you feel any kind of change in your symptoms, tell your doctor. I cannot stress this enough. You are a partner with your doctor in your healthcare. You need to take an active role. You are the only person who knows your body best, so if something feels off, say so.

You have to be your own advocate and cheerleader in this fight!!!!! No matter how minor the question may seem, ASK IT!!!! Make no assumptions!!!! Make sure that the doctor/nurses are listening and providing you with the approriate answers. You must be active and aggressive in your treatment  plan !!!!

Tips Provided by Web MD  ( my responses are highlighted in purple)

Until Next Time,

Live ~ Laugh ~ Love

 ¸.· ´¸.·*´¨) ¸.·*¨)

(¸.·´ (¸.·'   The Lupie Chick ™

Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx

Twitter: @lupieeChick & @AuNaturaleDC
The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Day 1: Why I Write About My Health #NHBPM

When I was first diagnosed with Lupus, I instantly took to the internet. I wanted to arm myself with as much information as possible. I was prepared to be over whelmed and immersed in everything regarding Lupus.  I was alarmed by the amount of “repetitive” information that was available. Everything was a repeat and very “ text book” .  I was clear what Lupus is (was), but I wasn’t clear as to how people lived with Lupus. What a day was like for a Lupie Chick ™.  How Lupus affected friendships/relationships/marriages.  How Lupus affected people’s mental state.  How Lupus affected peoples emotional/physical/sexual health. I had LOTS of questions.  I could not find what I was looking for; nothing was really answering what I wanted to know.  (For me), I needed visual, clear, concise answer(s). Based on the lack of information available, I decided to write from my perspective and keep it REAL & RAW (no sugar coating). If I was in pain I wanted to describe or show pictures of the type of pain or the intensity level of the pain. I was going to show my bare face (without makeup) and talk about the scares, the nasty remarks, and assumptions people make about you when you have an invisible disease. I wanted to provide an outlet for my fellow Lupie Chicks™ to know that they were not alone and we could cyber space high five each other.

I will never forget my first posting telling the world, I Have Lupus; people were calling me with tears in their voice telling me I had taken them on an emotional roller coaster. I heard from friends I havent from in years (more than 10).  It wasn’t my intention to make anyone cry or become upset, I wrote from the heart.  I wrote as if I was speaking to my girlfriends or family. I’ve found that my ability to be open and my style of writing works for the type of platform I’m building.

I’ve started posting daily pictures of myself saying Hello /Good Morning to my fellow lupies. If I miss a day, people will inbox me on Facebook or text me and say “where is our daily picture?”  I never knew that a simple picture would/could make someone’s day, or provide a little encouragement.  

Not too long ago, I received a mention on Twitter that said “because of the Lupie Chick I know more than I ever thought I could or wanted to know about Lupus and the struggle”.  I don’t know this young lady, never knew that she read my blog or tweets. I received a message from another young lady telling me “because of your blog I now know how to be a better friend “. I don’t get many (any) comments on my blog, and I wasn’t positive if anyone was reading my blog, UNTIL  I get the random messages, text,  or tags of people wearing purple, or mentions of “ The Lupie Chick”.  Just the other day, my hands had swollen and I was in severe pain. I posted a picture on line and a young lady asks “what’s lupus?”  I was in too much pain to type (reply) on my mobile, but I fought through and took a screen shot of the Lupus Foundation page explaining what Lupus is. Even in my mist of a challenge I was able to educate someone on this little known invisible disease.  I’m so honored and humbled to be able to do what I do, and I’m MORE honored and humbled to my readers and audience who help spread awareness.   I know that I will never stop writing, I will never stop bringing awareness, and I will never keep quiet - This is WHY I Write About My Health!

Until Next Time,

Live ~ Laugh ~ Love

Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Are you living in PEACE or PIECES??



Painting by Yvette Crocker

Yesterday I spoke to an ex (whom I haven’t spoken to or seen in more than 17 years). He seems so broken dealing with a lot of heath issues (specifically diabetes) and the lost of his immediate family members. He had been dealing with a lot of guilt from situations that occurred during our relationship and had remained in that moment. Listening to him made me realize that we have life choices.  We can live in PEACE or PIECES! I realized that I choose peace while he had chosen pieces. Yes, I know it is very difficult and hurtful to lose all of you immediate family members, and it’s also difficult to live with an illness (the same illness that had taken the lives of his family), BUT you have to choose PEACE. Choose to deal with whatever is before you and GO THROUGH IT (not around it).

I think back on all the test that I’ve had to take to have this testimony I speak about today. I have no shame and no silence.  I survived sexual abuse, domestic violence abuse, the challenges of being a teenage parent, betrayal, mis fortune, financial instability, unemployment, and now fighting for dear life to beat Lupus. I FOUGHT and will CONTINUE to fight EVERYDAY for the rest of my life.  We all have a responsibility to live our best life (whatever that may be). I know that everything that has happened to me happened for a reason to make me realize just how AWESOME I really am. I’m much stronger than I ever knew or imagined I could be. Do I have fear-of course I do.. but I have taken lemons (my fears & life challenges) and turned them into champagne (success)! This is MY LIFE- and whatever the devil has taken from me- HE CAN KEEP IT- BECAUSE MY GOD HAS SOMETHING BETTER FOR ME!!!!! I choose to live in PEACE!

To all of you that read this post- I ask you- how you will live the rest of your life? In PEACE or PIECES????

Until Next Time Fam

Live.. Love.. Laugh...

The Lupie Chick™

Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Get past the excuses!

** In my Sunshine Anderson Voice** “I’ve heard it all before-all the excuses why you (me) can't work out.  I’ve decided to get up off the cough, bury the excuses and get moving!!!! My body is going down and it’s time for me to pick it up!!!!! I’m tackling my destructive habits, done with the pity party, and instead of investing in spanx (I’ve been known to wear 2 pair of spanx at one time-pretty much cutting off my circulation and the ability to wobble or drop it low lol..lol..) I will invest in work out gear and equipment.

I went for a brisk walk yesterday for the first time since being diagnosed with lupus (July 2011). I told ya’ll that every time I make up my mind to workout-mister ole evil ass creep in. On my way home-it started raining, more like storming.. ok.. I’ll do the Zumba on the wii,**no excuses** mid way home, migraine was coming on.. NOPE-whipped out my peppermint essential oil and was rubbing my temples like my life depended on it ** no excuses**-Guess what?? I got home-it had stopped raining, and my migraine was fading to black… ITS ON!!!!!!!

I put on my T-shirt, leggings, and sneakers and hit the pavement.

** Please note the Lupus T-shirt, Lupus Bracelet, and purle shadow-#LupusAwareness EVERYDAY**

 Showing support to Running For Lupus with the "L" Hand Sign

When I was through I was a sweaty mess.. But I was ecstatic that I completed DAY 1 workout and didn’t cave into any excuses!!!! Below is my stats from the workout-using the sports tracker app on Android

The Top 6 Exercise Excuses and How to Beat Them

Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity.

 We all know that being physically active makes you healthier; you'll sleep better, feel happier and more energetic. But when it comes time to actually get out there and start moving, many of us have a long list of excuses not to exercise -- too little time, too little energy, or we simply don't like to work out.

How can you get past the excuses and get moving.

Exercise Excuse No. 1: "I Don't Have Time."

During your TV shows, use resistance bands, or walk in place. Or use Tivo so you can skip the commercials and see a one-hour show later in just 40 minutes, That's 20 minutes of activity right there. Better yet, turn off the TV and spend your newfound time working out.

Music-When we moved into our new home, we didn't have cable for a week or so- we turned on the radio, I realized that most stations have an online presence so I could still hear my go-go and Biggie. I was moving and grooving all around the house.  

Your exercise doesn't have to be a formal workout either. Try making small lifestyle changes that help you move more: take the stairs instead of the escalator, don't drive when you can walk, and get a pedometer and try to increase the number of steps you take throughout the day.

People who exercise regularly make it a habit.  They haven't bought any more time during the day than anyone else. What we've done is prioritize it. We find time for things we value.

Exercise Excuse No. 2: "I'm Too Tired."

It may sound counter intuitive, but working out actually gives you more energy. Once you get moving, your fatigue will likely disappear.

You're getting the endorphins [feel-good hormones in your body] to release, and you're getting the circulation going -- as opposed to coming home and crashing on the couch.

It may help to work out in the morning, before you get wiped out by a demanding workday.  If you're not a morning person, don't worry, just work out whenever you feel the best.

Exercise Excuse No. 3: "I Don't Get a Break From the Kids."

Take the kids with you. While they're swinging, you can walk around the playground or the backyard, or jump rope. Walk the kids to school instead of driving them. During their soccer games or practices, walk briskly around the field.

Use your family time for active pursuit. Go biking with your kids or just walk around the neighborhood with your children. When the weather's bad, try active video games (Zumba, & Michael Jackson Experience are my favorites), dancing, at home work out videos ( my buddy told me that Julian Michael's videos are the #TRUTH).

Remember that your fitness is good for your kids as well as you. When mom or dad is more fit, has more energy, the whole family benefits.

Exercise Excuse No. 4: "Exercise Is Boring."

You should want it and feel good about it before you do it. And it should feel good while you're doing it."

So how do you get there? First, find an activity you love. Think outside the box: Join a sports league (I’m thinking about joining the kickball league next season). Or, if you love music, line dancing ( can you say wobble!!!!).  There's an exercise for everyone.

If it makes exercise more enjoyable for you, it's OK to watch TV or read while you're on the exercise bike or treadmill -- just don't forget to pedal or run.

Working out with a group also helps many people. Not everybody's cut out to go on a six-mile run by themselves.To find a group, look at meetups ( meetup.com or simply recruit several friends.

Every once in a while, try something totally new. Mix it up so you don't get bored.

Exercise Excuse No. 5: "I Just Don't Like to Move."

There are people who really enjoy not moving. They prefer to knit, read books, or watch TV.

If it's sweating you don't like, you can get a good workout without perspiring excessively.You can work out indoors, where it's air conditioned. You can swim so you won't notice any perspiration. Or, try a low-sweat activity like yoga.

If exercise hurts your joints, try starting by exercising in water. The stronger your muscles get, the more they can support your joints, and the less you'll hurt. If you’re physical limitations is more serious, check with your doctor/coach who can help you figure out exercises that are still safe and easy to do.

If you don't like to move because you feel too fat, start with an activity that's less public, like using an exercise video at home. Walk with nonjudgmental friends in your neighborhood while wearing clothes that provide enough coverage that you feel comfortable.
Exercise Excuse No. 6: "I Always End up Quitting."

Set small, attainable goals. Then you're more likely to feel like a success, not a failure. If you exercise for five minutes a day for a week, you'll feel good -- and more likely to want to try 10 minutes a day the next week.

It also helps to keep a log and post it somewhere public (follow hash tag #DivaGettingFit on Instagram, Twitter, and Facebook).
 Having an exercise buddy keeps you accountable as well. My buddy is my sista friend Gayna. She encourages me, provides LOADS of tips, and holds me accountable.  Thanks BUDDY!!!!!

It's harder to start exercising than to stick with it once you've got your momentum going. Start a healthy habit today... you will feel better and will want to continue your healthy lifestyle everyday!

If lupus has you on the sidelines rather than in the middle of the action, this new low-impact exercise program, designed specifically for people with lupus, may be “just right” for you. Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving—and to improve your well-being in the process. DVD, 27 minutes.

Disclaimer: All exercise plans should be discussed with your physician or exercise specialist in order to maximize results and minimize possible harm.

Trying to get bootylicious for ya'll ( well for me)

I’m back!!!!!! Sorry I was gone for so long- I’ve been doing Lupus walks, hosting lupus awareness events, and I was promoted and relocated to Atlanta, Ga.  A lot of you have kept up with me via social networks, and I promise to blog and not abandon you guys.

Overall I’m doing great-I’m not in a flare up, I’m controlling my stress ( sometimes), my skin is clearing ( I had a few stress induced breakouts a few months ago) and my hair is back thriving, growing, and healthy.  Now my weight on the other hand… errrr…. ummm yeah…

The time had come for me to do something about all this jelly I’m walking around with.  I’ve been really uncomfortable in my skin since packing on 26 pounds (thanks to predisone). My clothing are  too tight, my breast got larger, feet got bigger/wider, and I got a booty ( I’ll keep the booty for $300 Alex) after I eat, I look 5 months pregnant and my tummy leaves an imprint in my maxi dresses ( not cute). I have been in denial for months- telling myself- I’m thick, I look ok- I can wear this weight- UMMMMMNNN .. STOP PLAYING AND FOOLING YOURSELF DIVA… its unhealthy and it DO NOT LOOK GOOD.

I think my son tried to drop a hint on me a few weeks ago, when I asked him to grab me a soda ( while in Wal-Mart) he said “ which one? “, I replied “ the Pepsi” he said “ you know they have diet right?” ummmm BOY HAND ME THE DAMN SODA! ** THAT’S WHAT I WAS YELLING IN MY INSIDE VOICE TO MYSELF** I looked at him and said “you got jokes”, he said “I was just showing you”. No baby boy was telling me I was fat and I need to be on a diet!

Over the last few weeks I’ve been preparing myself and getting my mental in order. I’ve stop purchasing soda ( I don’t bring it in the house), cut WAAAAAAAYYYYY down on my cupcake consumption ( I haven’t had one in 3 weeks), down to 1 cup of coffee a day, have increased my veggie intake, and making healthy choices with my desserts (frozen Yo plait whips are the best!!!). I’ve explained to my husband and kids- this is a lifestyle change FOR THE ENTIRE FAMILY! I will not cook multiple meals or buy grocery for me and a separate set for them- NO SIR- GOING BACK OLD SCHOOL- EAT WHAT I COOK OR STARVE (that’s what my mamma use to say).  I will not “diet” or do anything unhealthy- we all know they don’t work and I need to make lifestyle changes that I can live with forever.  I’m a work in progress but I have my eye on the prize.

I know I need to incorporate an exercise routine- BUT THE LORD KNOWS I HATE THE GYM!!!! **yikes**.  I’m not in a financial position to join a gym right now-so I will use my FREE resources ( NO EXCUSES). There is a park not too far from my house with a walking trail, there is a walking path in my neighborhood, and during inclement weather I will use my WII fit ( that i have YET to use). I will purchase a jump rope, hula hoop,hand weights, and resistance bands. ** I already have sneakers, and workout gear-just haven't used them**

Mister (my lupus) has been playing tricks on me! EVERY TIME I say I’m going to work out- he wanna show off, aches and pains in my legs, knees, and feet. I gave into his foolishness for a while- BUT BABY (in my Chrisette Michelle voice) it’s OVER NOW!!!!!! NO MORE EXCUSES!!! I’M NOT HAVING IT.

In order to track my progress, I needed to take my measurements and face the ugly truth.  $hit got real when I took my body measurements-BABBBYYYYYY- I was so embarrassed and angry.

My stats as of July 31^st

Weight-217.50-DO NOBODY SAY I DON’T LOOK LIKE I WEIGH THAT MUCH- THE TRUTH OF MATTER IS- I DO!!!!!!! Trust me – I weighed myself 3 times to be sure

Stomach -41 inches

Breast -36 inches

Left thigh-24 inches

Right thigh-25 inches

Waist 41.5 inches

Health & Fitness CHALLENGE!!!!!!!!!

Rules:

NO COOKIES/CAKE| CHIPS| COLA (including diet)| caffeine for 30 DAYS

NO FRIED FOODS FOR 30 DAYS

Drink 1 green smoothie (minimum) 3 days a week 30 days

Minimum of (1) meatless meal per week (for 30 days)

30-60 minutes of moderate exercise 3 days a week for 30 days

·         Start slowly and build up gradually. Give yourself plenty of time to warm up and cool down with easy walking or gentle stretching. Then speed up to a pace you can continue for five to 10 minutes without getting overly tired. As your stamina improves, gradually increase the amount of time you exercise. Work your way up to 30 to 60 minutes of exercise most days of the week.

·         Break things up if you have to. You don't have to do all your exercise at one time. Shorter but more-frequent sessions have aerobic benefits, too. Fifteen minutes of exercise a couple of times a day may fit into your schedule better than a single 30-minute session.

·         Be creative. Maybe your workout routine includes various activities, such as walking, bicycling or (line) dancing ** try doing to cupid shuffle, wobble, and booty call, back to back, and see if you don’t break a sweat! #trust you will**

·         Listen to your body. If you feel pain, shortness of breath, dizziness or nausea, take a break. You may be pushing yourself too hard.

·         Be flexible. If you're not feeling good, give yourself permission to take a day or two off.

My goal is to lose 10 pounds in 30 days and loose a few inches around my waist and stomach- I think that is attainable and realistic. My goal weight is 185 pounds, I would like to fit into my size 12’s comfortably, and overall get HEALTHY!!!!!!! Once I reach my goal weight and flatten the tummy-I will do something I’ve always wanted to do- a boudoir photo shot!!!!!!! Who’s with me??????

**waves** I know you want too- #LetsGo!!!!!!!!!

P.S. I decided NOT to post my "before"pictures ( I will post them on Sept 1st) and I will NOT step on the scale again until Sept 1st. Make sure you take pictures of your body during the 30 days and we will post at a later time.

Be sure to follow the hastag #DivaGettingFit on FaceBook, Instagram, and Twitter.

Disclaimer: The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment. Please consult your health care provider before starting any eating or exercise program

Infinite Possibilities

in•fi•nite / adjective
1. immeasurably great: an infinite capacity for forgiveness.
2. Indefinitely or exceedingly great: infinite sums of money.
3. unlimited or unmeasurable in extent of space, duration of time, etc.: the infinite nature of outer space.
4. unbounded or unlimited; boundless; endless: God's infinite mercy

pos•si•bil•i•ty noun, plural -ties for 2.
1. The state or fact of being possible: the possibility of error.
2. Something possible: He had exhausted every possibility but one.

Most people start the day with infinite possibilities, and energy to do whatever they desire. For the most part, they do not need to worry about the effects of their actions. I’m a planner, for years I would choose and iron my clothes (and accessories) for the week, I would plan my meals for the week, I grocery shopped for the month. Now I need to think about the weather, my temperature that day, and the whole day’s plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It’s very frustrating, especially when the plans change, hence my common saying “I hate change”.

My boss gave me a sticky note that says “Change Energizes Us” I wrote NEGATIVE on the note. Change makes me bonkers and I have to re strategize to make it through the day. I now live with the looming thought that today may be the day that a cold comes, or an infection, or any number of things that could be very dangerous.

The difference in being sick and being healthy has to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted. The hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wish I could make people understand everything everyone else does comes so easy, but for me it is one hundred little jobs in one. When you begin your day, most people start the day off by showering/bathing, get dressed, go to work or school, come home, eat dinner, relax, go to bed. For me- it’s open 1 eye, the other, sit up, put your legs on the floor, stand up, walk to the bathroom..GET MY DRIFT- its 100 little jobs in one. It is the beautiful ability to not think and just do. I miss that freedom.

6 Months of Living with Lupus

Wow, where did the time go? It has been 6 months since my lupus diagnosis. I had a doctor appointment Tuesday, and I was informed that I’m stable- not getting any worse, but thus far not any better. No reduction of the meds (bummer), next appointment Jan 4, 2012.

As I reflect on the past 6 months-it brings tears to my eyes. I’ve have several short stays in the hospital, many days/nights of pain, and depression. There were days when all I could do was cry.. ball up in my bed and cry. I see my doctor so often that I feel like we are dating. I know I’m a handful and I know I work his nerves. I’m always full of questions and comments. I just tell him straight- I can’t afford to do all of the things you want me to do! I know it sounds crazy that someone/anyone would say that they can’t afford to do something that may benefit them-BUT I can’t! I’ve made adjustment to my benefits at work (starting with getting the flexible spending account) in which I hope will help me financially with some of the things I need to incorporate. In the mean time, I’m doing the best I can with what I have. It has been extremely difficult for me to accept help. I’ve always been the care giver- not the one being cared for. I find myself ashamed of my appearance (because of the weight gain from the meds along with the scarring on my face). Ive had trouble with housekeeping and cooking meals sometimes-but THANKS to my children and my husband all of which have pitched in and got the job done when I couldn’t.

Some friends have hung in there with me and a lot have fallen by the wayside. That saying “out of sight out of mind “pops into my head. As long as I’m out of sight, I guess I don’t cross their mind(s). The other day my son’s step mother sent me a message on Facebook that said “you’re a fighter- I know firsthand” lol..lol.. That sentence made me laugh uncontrollably. The people that I least expect to hear from are the people that I’m in contact with. The people whom I thought didn’t care about me, have showed the most concern. For that I’m forever grateful.

November 20th my daughter turned 13 years old. Crazy me thought it would be a great idea to have a 3 day (weekend) celebration.



Pretty Girls Rock Party started Friday at 3:30pm and ended Sunday at 6:00pm. All I can say is a weekend of cupcakes, makeup, swimming, food, and dancing left me slaved to my bed for 5 days. I literally could not move. I had a conversation with my body and Lupus. I told them- “look I need for the both of you to cooperate and lean back this weekend. My mini me turns 13 once and I need to be there for her-if either of you act up, or show off there will be hell to pay!!!!!” My feet gave out Sunday afternoon, but all else was perfect!!!!! My daughter was so happy that I was able to participate and hang with the “girls” all weekend.

It’s been 6 months of living with Lupus. I’m determined to make the next 6 months much more enjoyable & pain free. I’m being forced to face one of my fears (water). It’s been demanded (by my doctor) that I begin an exercise regimen. It’s hard to imagine exercising when I’m in constant pain. I’m looking into water aerobics (to help with my joints) and yoga. I have an incredible fear of water (due to a childhood incident when I almost drowned).

I’m hoping that I can get back to wearing my stiletto’s shoes,walking without pain and leave the sneakers for workouts-not part of my daily uniform. I want to wear makeup when I want too-not because I feel like I have too (I’ve recently purchased the clarisonic brush-I’m already seeing results). I will also be doing a makeup over-a do over- a NEW ME!!!!!! So until next time Lupie Chicks-stay healthy and pain free!

** did you notice that my earrings match my jacket? I wrapped them myself using yarn**

Recipe: Blueberry Stuffed French Toast

Blueberry Stuffed French Toast

INGREDIENTS
1 loaf Panera Bread Cinnamon Raisin Bread
8 ounces reduced-fat cream cheese spread, at room temperature
4 tablespoons confectioners’ sugar
2 tablespoons grated orange zest
3/4 cup fresh blueberries
6 large eggs
1 1/2 cups whole milk
1 teaspoon vanilla extract
Pinch of salt
Optional: powdered sugar for dusting, Maple Syrup, or Orange Syrup ( see recipe at bottom)

DIRECTIONS
1. Cut bread into 1 1/4-inch-thick slices (you should have about 8 slices). Cut a slit through the top crust of each slice to form a deep pocket.

2. In a medium bowl, mix together the cream cheese, 3 tablespoons of sugar, and orange zest. Stir in blueberries and spoon filling equally into bread pockets. Lay stuffed slices of bread in a shallow 4-quart baking dish, such as a 15-inch-by-10-inch dish.

3. In medium bowl, whisk together eggs, milk, vanilla, salt, and remaining the 1 tablespoon of sugar. Pour mixture evenly over bread, tilting the dish to completely coat the bread. Let sit until the liquid is absorbed, at least 30 minutes at room temperature or covered in the refrigerator overnight.

4. Coat a large skillet or griddle with cooking spray, oil, or butter, and heat over medium-high heat. Add the Panera Bread Cinnamon Raisin Bread and cook until nicely browned and crisp outside, about 5 minutes per side.

Makes 6 servings.
Prep: 15 minutes (plus 30 minutes or overnight soaking)
Cook: 10 minutes

Optional: Orange Syrup
1/2 cup orange juice
1 teaspoon cornstarch
1/8 teaspoon orange zest
1 Tablespoon honey

In a small saucepan combine orange juice, orange zest, honey and cornstarch. Cook over medium-high heat - stirring often until syrup thickens. If it begins to boil, reduce heat slightly. This usually takes about 3 minutes to make.

Whether you're planning a simple brunch for a small group, or a meal to dazzle your family, the blueberry stuffed french toast is sure to be a hit

Chick Interrupted!

Dear Lupus,

You coward did you think I would allow you steal my breath and render me helpless? How dare you again try to invade my body? I have had enough of your games and I will never allow you to access my body without a fight.

You think you are so slick. You try to attack me and take me down not realizing that I had my guard up and was ready for you. You are a spineless coward trying to attack me when you thought I was at my weakest. You tried to take over my body and just walk away. It doesn't work like that. Why wouldn't you show me your face? Oh that's right you are so hideous that a face would be too humanistic for you.

Countless times you have tried to take me out and suck me into your sick world. Well I refuse to be a part of it and I want you to know that no matter how hard you try, no matter what you throw at me I will not give in to you. I will not allow you to ruin what God has made in His image. I am not your ordinary gal I have the best backer there is and God will not allow you to ever take control of me and my body.

It is a shame you are so lonely and always try to harm others. You are trying to wreak havoc in too many people's lives. I hope you burn in hell for the problems you have caused. You punk! You thought you had me? There is no way I would let you get me down.

Stay out of my life! I despise you and your beat down will be 20 times worse if you show your nasty ass around here again!

Letter to Lupus written by Racquel Dozier

Day 9: Younger Looking Skin plan

Reflect and Relax
By Amy Wechsler, MD

Reflect on Your Journey This is the final day of the Younger Looking Skin plan! Think about how the last 9 days have been for you. What's gone well? Do you feel physically and emotionally different than you did last weekend? What helped you most? Was it getting more sleep, connecting with friends, having more sex, or learning to meditate?

Take Two Just for You Pick the stress buster that you've liked doing best -- meditating, breathing, making love, having a worry session, whatever -- and do it twice today.
And don't forget to get your beauty sleep, be positive, foster friendships, move your body, eat clean, go green, relax, and simplify.

You've completed the 9-Day Mind-Beauty Makeover and tapped the power of The Mind-Beauty Connection to start reversing the effects of tension and time. You should be looking and feeling not only younger but also happier, healthier, and more whole; less stressed, more you.

By continuing even some of the new habits you've picked up in the last 9 days, you'll keep looking and feeling terrific, not just for now, but for life. Use these tips to nurture the beauty in you:
Stick to your newly formed habits as best you can over the next several weeks as your body continues to adjust and respond.

Feel free to add and subtract things that worked especially well for you, or didn't. The point is to discover what helps you, and that's going to be as individual as you and your life are. Use Dr. Amy's 7 Habits for Healthy Skin to stay on track.

Focus on making your daily activity something you look forward to. Get inspired with these videos.

Keep a handle on stress, don't skimp on sleep or healthy eats, and don't get lured in by the latest beauty products.

Tell someone else how the mind-beauty connection can reverse stress aging and bring out the best in her looks.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Day 8: Sleep more for younger looking skin

Get Enough Beauty Sleep
By Amy Wechsler, MD

Get More Beauty Sleep If you don't have any early obligations today, sleep in as long as you like. If you have to get up early, take a nap later in the afternoon. The ideal time for a nap is about 8 hours after you get up -- that's when your body temperature naturally takes a little dip (a sleep inducer); it's part of your normal biological rhythm. So give in, and experience the beauty benefits of a little power nap.

How to Power Nap
Take off your shoes, and get comfy on a reclining chair, couch, or bed.

Close the blinds, or turn away from any direct sunlight.

Set an alarm for 30 minutes. That gives you 10 to fall asleep and 20 for your actual nap.

Avoid napping after 3 p.m. -- it can disrupt your nighttime sleep.

Here's a great reason to get more sleep.
Keep focusing on your inner beauty, fostering friendships, moving your body, eating well, going green, relaxing, and simplifying.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Day 7: Be positive for younger looking skin

Focus on Your Inner Beauty
By Amy Wechsler, MD

Today is all about inner beauty. Use these inside-out beauty tips to get the radiant glow that comes with inner peace:

Focus on the Positive Try this tonight: Make a gratitude list for the day. Write down three great things that happened during your day. They don’t have to be out of this world. They can be as simple as the fact that you ate well all day, or that you hit a big deadline at work, or that the sky at sunset was beautiful. Just three good things, simple as that.
See how being positive can keep your heart young and help you avoid these.

Meditate Stress Away Stress takes its toll on your skin, your hair, and your natural good looks, so make sure to keep stress well under control. Meditation is a great way to work through stress, calm your mind, and keep your brain functioning at its peak. In the hour before your bedtime tonight, try this simple meditation.

Continue to foster friendships, move your body, eat well, go green, relax, and simplify.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Day 6: Quality time for younger looking skin

Have Fun with Friends

Spend Quality Time with Friends or Family Spend time today with people you care about. If you love to cook, invite them over for a scrumptious meal. If you don't want to cook, go out. The point is to get together with people who are meaningful in your life -- who make you laugh or inspire you -- and share stories and time. Put together the perfect dinner-party menu with healthy recipes from the RealAge Recipe Finder.

Extend the Evening for Extra Value If you and your dinner mates live close to one another, invite them back to your place for dessert or an after-dinner drink. If it's winter, light up the fire; if it's summer, sit outside in candlelight (for more vitamin G). Just make sure you're not up past your bedtime. Keep moving your body, eating right, going green, relaxing, and simplifying.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan

Reap the Benefits of Physical Activity

Day 5: Be active for younger looking skin

By Amy Wechsler, MD

Get Moving for Better Skin, Better Sleep
Do at least 30 minutes of physical activity today, and schedule some time for a few more active half hours over the next few days. Whether it's taking a class at your gym, going for a power walk with friends, taking a bike ride, or playing Frisbee in the park -- there are lots of options for doing your body good. Choose something you enjoy.

There's no point in being miserable.
Try one of these free workout videos -- there's something for everyone.
And get this: Exercise during the day helps you fall asleep at night and improves the quality of your beauty sleep. Just another one of the health benefits of physical activity.
Remember to eat well, go green, relax, and simplify.

Treat Yourself to Something Special
You've hit the halfway mark to better skin! Block out an hour today or tomorrow -- 1 full hour -- to do anything you'd like. Veg in front of the TV; go shopping for new makeup at a department store where you can get some TLC (check out Dr. Amy's Most-Worth-It Beauty Splurges); get a manicure and pedicure or the massage you still haven't had yet. Just make sure it’s fun and relaxing. This is quality you time.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Eat Foods That Are Good for Your Skin

Day 4: Best foods for younger looking skin

By Amy Wechsler, MD

Avoid Food That's Bad for Your Skin Focus on eating as cleanly as possible today. Avoid fast food, fried food, and anything processed. That includes refined sugar, soda (diet and regular), and processed meats and cheeses. Why? They keep your body and your skin off balance. Instead, eat foods that are good for your skin. Here's a quick list of foods for healthy skin:
Oranges
Cantaloupe
Tomatoes
Leafy greens
Salmon
Tuna

Firm and Bright
You're probably up to your eyebrows (Botoxed or not) with the mantra "eat more fruits and vegetables." But if you've yet to take that advice to heart, maybe knowing that they prevent wrinkles will do the trick.

The skin doc's three top picks: sweet potatoes, tomatoes, and cantaloupe.

What they do: Replenish your skin's supply of antioxidants, so they're ready to scarf up free radicals whenever they make an appearance. Free rads are highly reactive oxygen molecules that damage cells and contribute to just about everything that can go wrong with skin, from dryness to wrinkles.

Fresh and Juicy
Your body can't store much wrinkle-fighting vitamin C, so you need to top up your supplies regularly. The easiest way: Have some citrus every day.

The skin doc's four top picks: oranges, lemons, limes, and grapefruit.
Ounce for ounce, oranges are the top citrus source of C, but you can only eat so many, right? For variety, make lemonade; squeeze limes on melon; add grapefruit to salad; and, instead of drinking soda, fizz OJ with sparkling water. It all adds up.

What they do: Keep skin's vitamin C levels high. While C is a nifty antioxidant, that's not the key reason it's here. It helps keep collagen -- the supportive protein fibers that stop skin from sagging -- strong and resilient. (Flimsy collagen means lines and wrinkles.) Since collagen breakdown really picks up in your mid-30s, eat citrus early and often to head off aging.

Smoothing and Soothing
There's a particularly potent antioxidant known as EGCG that does all kinds of good things for skin. The best place to find it? True teas: black, green, or white (not herbal). Brew a full teapot every morning so that sipping 4 to 6 cups throughout the day is a no-brainer.

The skin doc's #1 pick: green tea.
While all true teas contain EGCG (by the way, that stands for epigallocatechin-3-gallate), the various types of green tea have the most. Dr. Wechsler's personal favorite is hojicha green tea (available at www.adagio.com). "The roasting process that turns this green tea a brownish color also lowers its caffeine content," she says -- handy if you're caffeine sensitive or it's one of those days when you don't need another stimulant.

What it does: Gives your skin a healthy dose of EGCG, which is a great multitasker. EGCG puts a damper on inflammatory chemicals involved in acne and sun-related skin aging, it helps prevent skin cancer; and it has a lion-tamer effect on tumor cells. What's more, green tea contains L-theanine, a de-tensing amino acid -- and anything you can do to stanch the flow of the stress hormone cortisol helps keep collagen fibers intact.

Dark and Green
Certain dark green vegetables, whether they're fresh, frozen, raw, or steamed, really deliver on vitamin A, one of the most skin-essential vitamins going.

The skin doc's three top picks: spinach, turnip greens, and broccoli.

What they do: Deliver a hefty supply of vitamin A, which supports skin-cell turnover, the process that keeps cell growth and development humming along flawlessly. Without enough A, skin becomes dry, tough, and scaly.

Fish Faves
Several cold-water catches give your skin a double benefit: age-fighting omega-3 fatty acids and the restorative powers of protein.
The skin doc's seven top picks: salmon, trout, tuna, sardines, Atlantic mackerel, Pacific herring, and most shellfish.

Just don't, uh, go overboard. As good as omega-3s are for skin (and the rest of you, too), worries about the amount of mercury in many fish mean it's smart to limit seafood or freshwater fish to two meals a week. That's a must for young children and for women who are pregnant, who may become pregnant, or who are nursing. (Go here for the government's fish guidelines.)

What they do: Omega-3s fight inflammation, now considered one of the top skin agers, and they also help protect against sunburn, enhancing the effects of your sunscreen's SPF. Protein is required to build and repair skin cells and to make enzymes and hormones that help keep it glowing.

Fill your grocery cart with all of these foods and you won't just look younger, you'll be younger. Eating at least one serving of fish a week and getting the right amount of antioxidants through diet or supplements lowers your biological age.

Click here to find more food that is good for your skin

Curb Cravings

To curb cravings and make sure you're eating only the best foods for your skin, drink water or (green)tea throughout the day. Mix it up with sparkling water, a splash of natural (no sugar added) cranberry juice (rich in antioxidants), or a wedge of lemon, lime, cucumber, or melon.

Keep going green, relaxing, and simplifying.

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.