Monday, December 3, 2012
I was nominated for a Health Activist Award!!!!
Friday, November 2, 2012
DAY 2: Advice For A Newly Diagnosed Lupus Patient #NHBPM
But beyond your emotional reactions, you may be wondering what your next steps should be. Below are some tips for moving forward after being diagnosed with lupus.
1. Get a second opinion. Before you begin your journey into chronic health care, you want to make sure you are heading down the right path.
2. Bring a friend or family member to be an advocate for you. You may need to have some tests done and see many doctors in the beginning. Having someone else there to take notes, ask questions, or just be an emotional support is very important. It is normal to forget a question, or not remember important information after a doctor visit. It is also great to have a supportive person with you who can hold your hand, distract you, make you laugh, or just listen.
3. Start a notebook or a folder for your healthcare. Take notes and ask for copies of your test results. Take time to actually read your tests and learn what they mean, or ask your doctors. Keeping a record now is a great start. It's always a much bigger job to back track and get records that you may need in the future. These records and notes can be helpful when you're seeing multiple doctors, dealing with insurance companies, applying for disability, etc.
4. Do your research. After being diagnosed with lupus, you will soon hear all kinds of words that you may not have heard before. Names of medications, secondary diagnoses, and symptoms can be overwhelming and scary. A great way to combat this feeling is to learn as much about lupus as you can and get yourself familiar with the lingo. This will help empower you in conversations with doctors and nurses. When you know what they are talking about you can ask appropriate and necessary questions. WebMD is a great place to start on your quest to educate yourself. There are many articles, posts, and videos on the site that are very informative.
5. Ask questions!!! Do not be afraid to ask questions, even questions you deem silly or unimportant. If you feel any kind of change in your symptoms, tell your doctor. I cannot stress this enough. You are a partner with your doctor in your healthcare. You need to take an active role. You are the only person who knows your body best, so if something feels off, say so.
The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
Thursday, November 1, 2012
Day 1: Why I Write About My Health #NHBPM
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC
The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
Friday, October 19, 2012
Are you living in PEACE or PIECES??
Painting by Yvette Crocker |
Live.. Love.. Laugh...
The Lupie Chick™
Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC
The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
Monday, October 15, 2012
Celebration of Life (My Life)
Me- 41st Birthday |
My New Grand daughter Mailia Elizabeth Fowler |
#My View- after the Falcons beat The Oakland Raiders 23-20 |
Me-Rocking my Leather Leggings |
The infamous Bathroom Pic ( in the Executive Suite @ The Georgia Dome) |
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Thursday, August 2, 2012
Get past the excuses!
Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity.
How can you get past the excuses and get moving.
Exercise Excuse No. 1: "I Don't Have Time."
During your TV shows, use resistance bands, or walk in place. Or use Tivo so you can skip the commercials and see a one-hour show later in just 40 minutes, That's 20 minutes of activity right there. Better yet, turn off the TV and spend your newfound time working out.
People who exercise regularly make it a habit. They haven't bought any more time during the day than anyone else. What we've done is prioritize it. We find time for things we value.
Exercise Excuse No. 2: "I'm Too Tired."
It may sound counter intuitive, but working out actually gives you more energy. Once you get moving, your fatigue will likely disappear.
You're getting the endorphins [feel-good hormones in your body] to release, and you're getting the circulation going -- as opposed to coming home and crashing on the couch.
It may help to work out in the morning, before you get wiped out by a demanding workday. If you're not a morning person, don't worry, just work out whenever you feel the best.
Exercise Excuse No. 3: "I Don't Get a Break From the Kids."
Take the kids with you. While they're swinging, you can walk around the playground or the backyard, or jump rope. Walk the kids to school instead of driving them. During their soccer games or practices, walk briskly around the field.
Use your family time for active pursuit. Go biking with your kids or just walk around the neighborhood with your children. When the weather's bad, try active video games (Zumba, & Michael Jackson Experience are my favorites), dancing, at home work out videos ( my buddy told me that Julian Michael's videos are the #TRUTH).
Exercise Excuse No. 4: "Exercise Is Boring."
You should want it and feel good about it before you do it. And it should feel good while you're doing it."
So how do you get there? First, find an activity you love. Think outside the box: Join a sports league (I’m thinking about joining the kickball league next season). Or, if you love music, line dancing ( can you say wobble!!!!). There's an exercise for everyone.
If it makes exercise more enjoyable for you, it's OK to watch TV or read while you're on the exercise bike or treadmill -- just don't forget to pedal or run.
Working out with a group also helps many people. Not everybody's cut out to go on a six-mile run by themselves.To find a group, look at meetups ( meetup.com or simply recruit several friends.
Every once in a while, try something totally new. Mix it up so you don't get bored.
Exercise Excuse No. 5: "I Just Don't Like to Move."
There are people who really enjoy not moving. They prefer to knit, read books, or watch TV.
If it's sweating you don't like, you can get a good workout without perspiring excessively.You can work out indoors, where it's air conditioned. You can swim so you won't notice any perspiration. Or, try a low-sweat activity like yoga.
If exercise hurts your joints, try starting by exercising in water. The stronger your muscles get, the more they can support your joints, and the less you'll hurt. If you’re physical limitations is more serious, check with your doctor/coach who can help you figure out exercises that are still safe and easy to do.
If you don't like to move because you feel too fat, start with an activity that's less public, like using an exercise video at home. Walk with nonjudgmental friends in your neighborhood while wearing clothes that provide enough coverage that you feel comfortable.
Exercise Excuse No. 6: "I Always End up Quitting."
Set small, attainable goals. Then you're more likely to feel like a success, not a failure. If you exercise for five minutes a day for a week, you'll feel good -- and more likely to want to try 10 minutes a day the next week.
It also helps to keep a log and post it somewhere public (follow hash tag #DivaGettingFit on Instagram, Twitter, and Facebook).
Having an exercise buddy keeps you accountable as well. My buddy is my sista friend Gayna. She encourages me, provides LOADS of tips, and holds me accountable. Thanks BUDDY!!!!!
It's harder to start exercising than to stick with it once you've got your momentum going. Start a healthy habit today... you will feel better and will want to continue your healthy lifestyle everyday!
Wednesday, August 1, 2012
Trying to get bootylicious for ya'll ( well for me)
Friday, January 27, 2012
Infinite Possibilities
in•fi•nite / adjective
1. immeasurably great: an infinite capacity for forgiveness.
2. Indefinitely or exceedingly great: infinite sums of money.
3. unlimited or unmeasurable in extent of space, duration of time, etc.: the infinite nature of outer space.
4. unbounded or unlimited; boundless; endless: God's infinite mercy
pos•si•bil•i•ty noun, plural -ties for 2.
1. The state or fact of being possible: the possibility of error.
2. Something possible: He had exhausted every possibility but one.
Most people start the day with infinite possibilities, and energy to do whatever they desire. For the most part, they do not need to worry about the effects of their actions. I’m a planner, for years I would choose and iron my clothes (and accessories) for the week, I would plan my meals for the week, I grocery shopped for the month. Now I need to think about the weather, my temperature that day, and the whole day’s plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It’s very frustrating, especially when the plans change, hence my common saying “I hate change”.
My boss gave me a sticky note that says “Change Energizes Us” I wrote NEGATIVE on the note. Change makes me bonkers and I have to re strategize to make it through the day. I now live with the looming thought that today may be the day that a cold comes, or an infection, or any number of things that could be very dangerous.
The difference in being sick and being healthy has to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted. The hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wish I could make people understand everything everyone else does comes so easy, but for me it is one hundred little jobs in one. When you begin your day, most people start the day off by showering/bathing, get dressed, go to work or school, come home, eat dinner, relax, go to bed. For me- it’s open 1 eye, the other, sit up, put your legs on the floor, stand up, walk to the bathroom..GET MY DRIFT- its 100 little jobs in one. It is the beautiful ability to not think and just do. I miss that freedom.
Thursday, January 26, 2012
Loving The Skin I'm In
People with lupus know the disease can affect various parts of their body, both inside and out, in a variety of ways. Though lupus is known to affect the joints, kidneys, heart and lungs, more often than not, one of the clearest signs that a person has developed the disease is the way it affects the skin.
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Lupus had (in my opinion) had taken my beauty. My face was on display for everyone to give me that side eye and saying " what the heck happen to you??" Although my family and friends assured me that I was beautiful and it was "ok"- I felt like that ugly duckling. A dear friend of mine ( First lady of Blue Line Productions - Rana) sent me a message one day that read " I miss your pretty face". She was referring to not seeing me out and about at local functions in the DC metro area, I started balling- because I literally MISSED MY PRETTY FACE! I'm 6"2 and wear 5 inch stilettos ( well I use too, until lupus started affecting my joints and my feet- damn him!) and I would walk in a room LIKE I OWNED IT-( at least like I paid the light bill..lol..lol..)- then came the red sores, the black scares, and the discoloration in my face- and my obsession with Dermablend!!!!! I would pack that stuff on like my life depended on it. I was hiding... and worse of all- I hated the skin I was in......
** wearing full coverage Dermablend makeup **
My physician gave me a referral to see Valerie D. Callender, M.D. to assist with my skin condition
Dr. Valerie Callender is an internationally recognized Board Certified Dermatologist, who is known for her expertise in Pigmentation Disorders and the medical and surgical treatment of Hair Loss in Women. Dr. Callender has written twelve (12) textbook chapters and many articles for academic journals. She has recently co-edited a textbook on the Treatment for Skin of Color
Dr. Callender office is located at 1220 Annapolis Road, Suite 315, Glendale, MD (301)249-0970. Her office offer a range of facial treatments, cosmetic procedures, & body treatments. On my appointment date- the office was PACKED! The ladies at the reception area were very nice and & courteous. My wait wasn't as long as I expected ( I waited maybe 15 minutes before I was taken to the examination room). Dr. Callender's assistant took a quick assesment of my medical history, and my concerns. 10 minutes later enter in Dr. Callender herself. We chatted a bit, she tried to lighten the "mood" ( I was very tense and nervous). As soon as Dr. Callender put on her gloves and started examining my face, the tears started to flow. She immediately stopped and comforted me. She continued her examine, speaking in a calm voice and re assuring me that all was going to be ok. I advised her what I had been doing, what products I'd been using, and just blurted out " I hate the way I look, I don't look good and I don't feel good". We discussed treatment plans, and she tried to assure me that she would help me. She asked me to trust her- she told me SHE WOULD NOT GIVE UP - MY SKIN WILL BE CLEAR AGAIN! At the end of the examine, I ask- " what makeup brand would you recommend for me?" she looked up at me ( dead in the eyes) and replied " NONE- when I get through, you wont need makeup!" ** what did she just say.. I wont need make up ... whoo freakin hooooooo!!!! let the treatment begin!!!!** {insert laughter from myself and Dr. Callender}
Below is my daily routine prescribed to me by Dr. Callender ( she actually wrote this down for me- including the steps!!!!)
** yes, my clarisonic is PURPLE in honor of my daily fight with Lupus**
~AM~
Cleanse (w/ clarisonic brush & Neutrogena Forming Face Wash)
SPF 70 ( all over face)
apply hydroquinone (4% strength) to dark spots ( using a qtip)
optional: apply makeup
~PM~
Cleanse (w/clarisonic brush & Neutrogena Foaming Face Wash)
Apply thin layer of Differin Gel ( all over face)
apply hydroquinone (4% strength) to dark spots ( using a q-tip)
I have been following this routine for 4 weeks. Look at me now!!!!!
No Makeup
**Excuse the pink hair rollers, I was setting my hair for a braid & curl out**
LOOK AT ME NOW AFTER 4 WEEKS!!!!!!! My skin is in the best shape right now. I owe it all to Dr. Callender!!!!! I'm positive that with a few more weeks of treatment I will be back to my beautiful dewy CLEAR skin " I loved before Lupus". As a physician, the most valuable thing Dr. Calender did was LISTEN!!!!! She allowed me to express my concerns and cry. She did a though examination and a though assessment of my skin care regimen( jotting down my current routine, noting the medications/creams previously used ( side effects, etc), eating habits, water intake, etc). She even gave me a "goodie bag" filled me with samples before I purchased full size bottles/tubes of the prescribed products. There's nothing more rewarding than a doctor that LISTENS to you and your concerns, and give you a "specific" treatment plan for your issues. I give Dr. Callender a A+ for a job well done, and she will FOREVER BE MY GO TO DERMATOLOGIST!!!!
Tuesday, January 24, 2012
My Interview with God
"If you have the time," I said.
God smiled and said: "My time is eternity and is enough to do everything; what questions do you have in mind to ask me?"
"What surprises you most about mankind?"
God answered:
"That they get bored of being children, are in a rush to grow up, and then long to be children again. That they lose their health to make money and then lose their money to restore their health. That by thinking anxiously about the future, they forget the present, such that they live neither for the present nor the future. That they live as if they will never die, and they die as if they had never lived."
God's hands took mine and we were silent for while and then I asked:
"As a parent, what are some of life's lessons you want your children to learn?"
God replied with a smile:
"To learn that they cannot make anyone love them. What they can do is to let themselves be loved.
I sat there for awhile enjoying the moment. I thanked Him for his time and for all that He has done for me and my family, and He replied: "Anytime. I'm here 24 hours a day. All you have to do is ask for me, and I'll answer."
People will forget what you said. People will forget what you did, but people will never forget how you made them feel.
Author Unknown